Our Family’s CSID Evolution – 2019 Update

It’s interesting how this blog has evolved over the years. Since by whatever combination of methods and miracles, my youngest child with CSID is pretty much able to eat whatever eat wants within reason (often at my disapproval – but how many of you parents would deny your children waffles and peanut butter if they could tolerate them after years of extreme diet limitations?!)

Both of my CSID offspring have learned their limits, and occasionally over do it. But they recover quickly and go on living normal lives for the most part.

I’m going to be honest here for a couple of reasons.

  1. I don’t want to give some false sense that we all make perfect dietary choices or that our refrigerator and pantry are somehow void of packaged or processed food. In an ideal world, I wish it was! But that’s not realistic and I’ve had to learn to choose my battles and focus on those of us who require the most specified dietary needs at the present time.
  2. I want to give hope to those struggles, whether for themselves or on behalf of their children. There were many years when I did have to spend hours in the kitchen each day, carefully monitoring every bit of food Parker ingested. (Eczema and Food Allergies ) For two years of that time, I was also working full time! Every extra dollar we had went to supplements and specialty ingredients. I don’t deny his “healing” process started with prayer, but that doesn’t mean God didn’t direct me on how to care for him so I could share my experience here, in a public and global platform, and that my methods could also bring relief and success to others.

My CSID children’s tolerance update 2019

Parker, age 14

Parker will experience digestive complaints when he over does starches (such as the week he ate several McDonald s breakfast sandwiches). Though I’m more convinced the oils used to cook fast food also irritates his digestion, since he can eat similar food at home without issue. When he does experience digestion upset, he takes my home tummy remedy of peppermint tea, lemon, honey, and about 1/2 teaspoon marshmallow root powder. Generally after a BM, he’s back to normal!

Within the last year, Parker has also been assessed for learning issues. He’s struggled with school as far as attention, turning in work, keeping track of assignments, etc. When he got a concussion in September of 2017, these problems got much worse and his doctor referred him to a specialist who conducted a variety of tests. The conclusion is that he has ADHD combined type. I’m not 100% convinced that his increasing his carbohydrates intake of typical American foods isn’t making the symptoms worse, but he’s almost fifteen years old now.

He doesn’t have a lot of time to experiment with diet changes and see if that helps. He was prescribed medication, but I’m not quite on board with that yet. One side-effect is reduced appetite and since he’s still not gaining and keeping on weight consistently, I’m not sure that would be a good idea. Not to mention the other slew of long-term effects on his brain.  For now, he’s got a 504 plan. I mention this in case other children, teens, or adults with CSID also have ADHD or learning issues. Maybe doctors will take the brain-gut connection more seriously if these connections are mentioned more often.

Elora, age 25

My daughter, Elora, with CSID is now a 25 year old mother ready to give birth to her second baby in a matter of weeks. She mostly avoids juices and any drink containing sugar, including apple juice and soda pop containing corn syrup or cane sugar. She uses fructose in her coffee, however. She also knows she can only take a couple of bites of cake! More than that, and she’s running to the restroom.

I don’t hear of any other digestive complaints from her aside from irregularity. But she is 9 months pregnant! Also a reminder that with her first pregnancy, she felt her tolerance to sugar increased for whatever reason. However, it declined again after she quit breastfeeding. Not sure the connection to CSID here, but again, I mention details in the case anyone else out there has a similar experience.

I’m super excited about gaining a granddaughter! And will obviously be distracted even more than normal once she arrives!


My Son with Celiac Update

Dawson, age 19

Back in August, I took my son, Dawson, to a dietitian I met at a networking meeting I go to every week for our hardwood flooring business. Her and her husband, a chiropractor, run a Apex Chiropractic and Wellness in Boise, Idaho.

Aside from gluten intolerance, Dawson has suffered from ADHD, social anxiety, mild depression, insomnia, and chronic ankle issues for several years. He also gets hives or headaches for unknown reasons.

So Erin recommended a blood test that would determine which foods, chemicals, etc. could be causing inflammation in his body, followed by a protocol of  14-day menu plans that started with eliminating anything that was causing the slightest amount of inflammation.

If you have the resources to do so and can get a dietitian or physician to order the test, I strongly recommend you do so! It may help you to discover the mystery component that is contributing to ongoing symptoms regardless of your attempts to curb major dietary culprits.

MEDIATOR RELEASE TEST and LEAP REPORT

The test is named MRT (Mediator Release Test) and it was done by Oxford Biomedical Technologies in Riviera Beach, FL. The results were included in a report and protocol called LEAP ImmunoCalm (R) Dietary Management Program. My son had his blood done at a local lab and they mailed it in. I imagine any dietetic or physician can have it ordered. I’ve linked the test and program to their names above to the lab website that conducted the tests.

The results were a bit of a blow. Since I’m summarizing here, I won’t go into details, but they did reveal he was still getting traces of wheat somehow, and that he is having major inflammation response to corn, rice, soy, chicken, and turkey! Other foods causing slight, yet significant inflammation are sugar, onion, tomato, dairy, black pepper, and vanilla. You see how the most random food can be revealed?!

Dawson is doing better as of today, but still working on learning how to prepare his meals, gaining weights, and eating often enough to maintain his energy levels. He has not added the major inflammatory foods back into his diet as of yet.

Of course, this has made it very challenging in our house as I am also avoiding very specific foods in order to get back on track with a Paleo-base diet by starting with another 21-day sugar detox, then transitioning into Keto for however long it takes for me to maintain self-control and indefinitely avoid processed sugar, gluten and most grains.

More on that in my next post, coming soon!

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My 4th 21-Day Sugar Detox – 2019

As I geared up for my daughter, Tayler’s, wedding this past September, I knew I needed to be at my best, so I took on my third 21-day sugar detox. Every time I’ve done this, I’ve learned something new about how to simplify the process as well as how my body and mind respond to sugar (this includes all forms natural or processed such as fruit, honey, etc.) and grain-based carbohydrates such as rice or corn.

From my past two 21-day sugar detox experiences, the first few days were always the most difficult. But once I was sleeping better and had more energy, it was much easier to avoid temptation of taboo foods for the remaining of the detox or fasting period.

However, I always seem to start giving in once the holidays begin. It starts with indulging on a few pieces of Halloween candy and then evolves into a full meal at Carl’s Jr during a long day of Christmas shopping! By the time it’s actually December, I’m roughly eating 50/50 Paleo/SAD (Standard American Diet). I’m sleeping less, more irritable, and the brain-fog and forgetting things is out of control. And the end of 2018 was no exception.

I honestly don’t know how long I will succeed this time, but I’ve got to give it another try. I know I will feel better inside and out — for however long it lasts!


Past 21 Day Sugar Detox Challenges

As I prepared for my fourth 21-day-sugar detox, I reflected on some things that have made it challenging in the past. I’m really working on being realistic with my goals for 2019, so I needed to asses the struggles I’d had before, and perhaps pinpoint why I’ve found it hard to stick with the diet for the long-term.

Eating Often Enough

On any given week day, I tend to consume 2 to 3 cups of coffee over a couple of hours as I review my goals for the day and get to work. Our family business requires a lot of tasks and some days I get caught up in bookkeeping or project scheduling and before I know it, it’s 2pm and I haven’t eaten a thing!

Then I’m off to prepare a batch of Paleo pancakes with eggs (no matter the time of day, I usually prefer a breakfast food first!)

My second meal of the day is then dinner at around 7pm. This will include a large portion of animal-based protein, cooked vegetables and a starch (rice, corn, potatoes, or sweet potatoes).

I don’t drink enough water throughout the day either.

So my first hurdle to overcome is getting used to eating three meals with snacks in between to avoid getting hungry, which during the detox leads me to getting hangry!

Meal Planning Challenges

I’ve been known to get pretty ambitious once I decide to take on major dietary changes. I’m determined to follow the diet exactly and go head-long into ordering and shopping to stock my pantry and fridge with all the necessary items for a full week or more of recipes.

Then I end up with way too much fresh food on hand, and find myself scrambling to prepare all of it regardless of the recipes and menu. I have too many left overs or lack the time to use all the fresh produce, and inevitably end up throwing stuff out.

As of today, I’m on DAY 5, but started out using the food already in my fridge for the first few days. I had deli meat and cheese, eggs, salad ingredients and some fresh vegetables I needed to use up first.

I finally went shopping based on the Week 1 menu in the 21 Day Sugar Detox Daily guide on Friday and ordered the few pantry items from Thrive Market that I knew I couldn’t find at Whole Foods.

Online Updating

My other challenge in the past was planning on updating my progress regularly and failing to keep consistent. As part of my overall 2019 goals, I want to be realistic about the rate I post to my various social media outlets. (I posted to my Author Website last week on this if you’d like to read more click HERE)

For this blog/website, the most realistic effort I can make at this point is to tag my relevant Instagram (find me at rk3775)  posts with #csidrecipes #ketoforkids #21daysugardetox #paleo and other similar phrasing. Before I take on trying to add more posts, I really need to review and update all the current posts that are already here and note the date of the update for those who haven’t been following this blog for long.


Recommended Resources for CSID, Paleo, Sugar Detox and Keto

As always, I highly recommend the following recipe books and dietary guides, as both Diane Sanfilippo and Danielle Walker have become my go-to gals when it comes to amazing recipes and paleo/keto lifestyle education.

As always, please modify any recipe per your specific dietary needs and food sensitivities!

Diane Sanfillippo (BalancedBites)

PRACTICAL PALEO

21 DAY SUGAR DETOX DAILY GUIDE

KETO QUICK START


Danielle Walker (AgainstAllGrain)

Find the link to all these books HERE

  • Against All Grain
  • Against All Grain: Meals Made Simple
  • Celebrations
  • Eat What You Love

 

I pray peace and hope in 2019 to you all! Have an amazing year!