I woke up this morning with a conversation thread from a CSID Parents & Patients group on Facebook feed. I spent about a half hour reading through recent posts and am still amazed at how little information is out there to help parents and newly diagnosed adults. Though I’ve said this again and again — I’m still learning nearly 12 years after my youngest child was diagnosed!
Yet, I feel my experience and all I’ve learned can help others, if nothing else, realize they are not alone. Though I’ve never been able to talk a GI into doing a repeated bowel biopsy, I believe our tolerance to certain amounts of sucrose and starch increase as we monitor our diets and reduce excess amounts of irritating foods.
As much as I want to continue to document our experiences and new recipes, the honest truth is that I’m too busy in the other areas of my life. It’s hard enough keeping up with the needs of my own family. This is in part why I wrote the book A Place to Start Without Sugar or Starch. It doesn’t have all the answers, but for anyone who has tried to contact me for specific guidance via email, my answer is likely within the pages of what I’ve already written.
It occurred to me that there may be other mother’s out there who would be interested in partnering with me to help continue the cause. Why start a whole new blog when you can just add to mine? I could also use someone savvy with a camera, as my recipe pictures could all use an update!
If you are interested, I would have a few simple parameters based on my Essential Carbohydrate philosophy.
CSIDRecipes Mom Partnership Criteria
- Trial to include choosing 3-5 of the existing recipes on this site, providing feedback for any changes and taking high-quality photos to use for recipe promotion
- No blog experience necessary, but helpful
- Agreement to use pure ingredients and focus on healing foods (not simply reproducing mainstream processed foods). The exception would be special occasion treats on a case-by-case basis
- We don’t use Sucraid, but I’m happy to publish recipes that require its use as long as they aren’t promoting the excess intake of sugar.
- Provide a brief biography of your own CSID experience with a photo
- I reserve the right to edit new posts prior to publishing to ensure they follow formatting and content parameters
- This would be a free service to help others facing the challenges of CSID as you also learn new recipes and meal ideas for your self or family.