Breastfeeding and CSID Research and Surveys

I am collecting information regarding breastfeeding, digestive health in general and the CSID connection. To date, there is no documented research indicating that children with CSID present any symptoms prior to beginning solid foods. However, my son Parker DID show signs of failure to thrive, suffered from seizures and presented other symptoms related to CSID long before he had anything but breast milk.

Breastfeeding to strengthen digestive health

According to some studies on breast milk in general, the oligosaccharides found in human breast milk can reduce or prevent diarrhea. This information got me to thinking how my son, Parker, never had full-blown diarrhea, though his BMs were always oily, very smelly, and bulky compared to my other breastfed children. As many of you mothers out there know, breastfed infants rarely produce smelly BMs. Usually the “stink starts” when other food is introduced!

As a result, I would like to gather some more information in order to write a detailed article which touches on CSID, but reaches a broader audience of mothers who may not recognize this additional benefit to breastfeeding their child. Though CSID cannot be prevented by breastfeeding, my hunch is that it can definitely protect your child from developing other digestive diseases or infections due to an imbalanced gut. There is already proof that breastfeeding can have a “protective affect”on children susceptible to Celiac Disease.

Breastfeeding may have prevented my son from becoming severely dehydrated

When I think back to just before Parker was diagnosed with CSID, I recall the week before seeing his GI, he was very sick and lethargic. He was having several BMs, several in an hour at times, but nothing that appeared to be diarrhea. After receiving his diagnosis, I discovered that many children with CSID are hospitalized due to dehydration. Though Parker was hospitalized several times, the reason was always due to his seizures, not his digestive woes. Since I breastfed Parker until he was about 14 months old, adding only some solid food at nine months (most of which I removed from his diet since nearly everything seemed to exacerbate or increase his symptoms), I fully credit the benefits of breast milk as the sole reason he was never hospitalized for dehydration. However, breastfeeding may also have been the reason for his delayed diagnosis given it may have prevented the severe diarrhea that would have demanded the doctors attention!

Share your CSID and breastfeeding story connections

Of course, this theory cannot be proven for our particular circumstance. However, if we can band together and share our stories related to breastfeeding (or not) and try to find a connection, we may be able to help that child and mother facing undiagnosed digestive issues.

You will see two surveys posted on the left side of this blog. If you have a child with CSID or you suspect CSID or another digestive issue is the cause of your child’s health problems, please select the survey answers that best represent your situation. If you are interested in sharing your story in more detail, please respond by commenting on this post or by sending me an email.

Thank you so much for your support on this important topic!

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4 thoughts on “Breastfeeding and CSID Research and Surveys

  1. Tami Taylor says:

    My son has always had frequent bowel movements but they became a lot more like diarrhea when I started him on formula. Twice I tried to stop breastfeeding because of medical reasons and regret it. When my son was failing to thrive (and still is!) I was told to put him on Elecare formula. He will not drink more than about 2 ounces a day. I have tried to get my milk back with success and am now breast feeding as much as possible (he is 10 months old) but I have to supplement. He has days where he does not want to eat anything. I actually just got test results back online from an endoscopy and found he has CSID. I have not been able to talk to his GI because of Christmas vacations and I live out of the Country and was home (in the states) for 5 weeks seeing all kinds of doctors trying to find out why he is not growing or eating (he went from 75 percentile to 5%). Going crazy knowing what to do and how to help him and what to feed him as he will hardly eat anything that is on the “okay ” list,

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  2. Teresa McCarthy says:

    My son Jameson now 4 years old wasn't diagnosed with CSID until he was 3 years and 9 months and he started showing signs of diarrhea at 10 months of age when solid foods were introduced. I breasted him until 1 year old and once we stopped breastmilk, I seen a significant increase in his loose bowels. Jameson has never been hospitalized for dehydration which I am very blessed for but I also believe 100% that it was because I breasted him until 1 years old because he has always been 99% or above for his height and weight. We now have another son who is only 3 weeks old so I plan to nurse again until 1 years old but at 11 months of age we are going to have a biopsy test to see if he has CSID and if he does than I will continue breastmilk for another year until he is 2 years of age because I truly believe that it will helps his insides so much more!!!

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  3. Amanda K. says:

    My son, now 16 months just got his diagnosis. I have been and am continuing to breastfeed him. Although several “professionals” say it would be better to stop. I just don't have enough data to back up that opinion yet. So we continue to try to figure this out.

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  4. Deb Kammerlander says:

    When I was a baby way back in April of 1969, my mom choose not to breast feed me. She said that she had tried it with my brother only 15 months older and was not successful. (Times were different back then) Anyways, my mom and dad said that they could tell something was wrong and not right with me by the time I was 3 days old. It took another 18 months to identify it and diagnos it. I was stricly formula fed and I can only but imagine that breast milk for myself would of been better.

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