I took the next step in organizing all my notes today. At the bottom of my files I came across an article published by HUMAN MUTATION that I must have pulled from a medical database when I was working on my degree a few years back. I noticed the article referred to CSID as “Congenital Carbohydrate Malabsorption”. I then plugged in this phrase to my Google and Bing search engines and discoverd the following online articles that also mention congenital sucrase-isomaltase deficiency. I am not sure why these article do not appear when searching CSID, but I figured the best I could do to help others trying to find more information would be to include the links here.
As usual, these describe the cause of CSID and little of the treatment, recipes, etc. However, I am providing them to assist in understanding what CSID is, an important factor in understanding why certain foods should be avoided.
Carbohydrate Malabsorption/Intolerance (refers primarily to infants)
Also, there is another CSID page on Facebook called CSID and Us. It seems to have recent activity and is another way for us to connect with other CSID parents.