Second Edition of A Place to Start Without Sugar or Starch

A Place to Start Without Sugar or StarchI’ve finally published the second edition of my CSID Journey and Diet Guide on Amazon!

For those of you who purchased a copy of the first book, please know very little is changed besides the cover, a few minor wording details, and an update on our family’s progress. It’s also a lot less expensive than the First Edition, since I was able to use Create Space on Amazon and self-publishing has come a long way in a few short years.

I’d love to hear your comments and suggestions on this revised edition and look forward to your Reviews so that parents looking for a resource like this can trust it is what they need and want!

Read more on my BOOK INFO page.

I’m sorry that I wasn’t able to do a more thorough revamp, but I know it’s important to offer something tangible at this point. If you are looking for recipes after you’ve determined appropriate and tolerable foods, I highly recommend (and have several times in other posts), Practical Paleo and Against All Grain books. I envision you using A Place to Start Without Sugar or Starch alongside these cookbooks to tailor recipes and meal plans to your family’s individual needs.

I wish you wellness and happiness in the upcoming Holiday Season!

With CSID – Bad Days Are Inevitable

When Symptoms Change but Tolerance Doesn’t

I think we deceive ourselves only when we change what we can eat just based on that what we think we’re reacting to. In our family, we’ve learned the hard way that just because it doesn’t upset your stomach doesn’t mean it’s not upsetting something in our body.

As a Christian, I’ve learned about listening to the Holy Spirit and that if you don’t listen when you know you’re hearing the voice of God, that’s considered sin. It might be a spiritual consequence that we write off as worrying too much, or over-thinking. But for those of us who have lived long enough we know that when we do something on the contrary to what we know is right, eventually we suffer for it or the people around us do.

This is exactly what happens with dietary limits. Every time I think I can get away with eating something I know I shouldn’t end up suffering for it. And lately that’s suffering seems to come and more intense and immediate episodes.  I’ll get a migraine, or have extreme fatigue or irritability. Almost always I can trace it back to eating or drinking something that I probably shouldn’t have consumed.

The same goes for making exceptions to what my kids can eat.

Now that my oldest son has a positive Celiac diagnosis, we have one more reason to make our home gluten-free. But removing gluten alone doesn’t guarantee a healthy body any more than removing sugar for those with CSID guarantees symptoms will cease for good.

This week, I’m writing a blog on cellular health for Energetic Nutrition. As I research all the many processes and functions our cells go through, I’m learning of the thousands of possible scenarios that could cause a cell’s health to go awry. Of all the components required for a cell to work properly, good nutrition and the ability to combat negative influences are crucial. If the cell doesn’t have what it needs, it can’t duplicate in a healthy manner AND it can’t fight off harmful elements such as free radicals.

This takes me back to my original philosophy when it comes to CSID:

Add what helps, and remove what harms.

Of course, knowing what helps and what harms can be objective. There are many theories out there, and we have to decide what makes the most sense to us and our families. I don’t have access to current statistics, but it’s my understanding that starch tolerance levels can still be quite high for those with CSID. Primarily, sugar, or sucrose, tends to be avoided more than sources of starch.

However, as necessary as starch is as a form of carbohydrate, different types of starch can create very different results. Some forms of starch can cause digestive distress, such as those that come from grains or beans. Others, are dense sources of nutrients and relatively easy to digest, such as those from sweet potatoes or some root vegetables.

The difficulty is learning to know what each individual can manage and what symptoms, in addition to or besides digestive distress, to look for.

The alternative is deciding to eliminate or reduce potentially harmful foods or ingredients to avoid future problems.

For my family, I’ve found that incorporating a majority of Paleo-friendly foods into our household meal plan is beneficial for all of us. We receive ample sources of vegetables and proteins, healthy fats, only natural sources of sugar (fruit and occasional honey, coconut sugar, or maple syrup) and easy to digest carbohydrates. As we shift from our Summer Slide, and considering we now have a child with Celiac, all sources of gluten are gradually leaving our home.

This is the key to keeping me sane — deciding that what we offer in our home will be the ultimate source of health and healing. But not being so concerned with what is consumed away from home. My kids know what is helpful and harmful and are all at the ages where they need to learn to make their own decisions for health. If they give in to a food that could potential make them sick, they will learn their limits and have to decide differently the next time.

However, it is so easy to get discouraged! I also have those times where I think I’m making all the right decisions and dietary limitations and one of us still ends up having symptoms.  The truth is there are just way too many variables for us to control. And since we can’t physically see how everything from food, environment, or even emotional stress can effect each of our cells and ultimately, every system and defense mechanism in our bodies, we have to learn to accept the bad days along with the good ones. We have to do the best we can one day at a time, learn from our mistakes and compromises, and keep educating ourselves and making adjustments as needed.

As much as I still have to learn about digestive health and how it impacts every member of my family, I’m grateful for what I’ve learned in the past ten years about what can truly help and what can possibly harm. At least at the end of the day, I can know I did the best I could with the knowledge I had at the moment. And I believe my husband and my kids all appreciate my efforts and if they aren’t already, will be grateful for the efforts I made to provide them with the knowledge they need to make wise choices for their own health for years to come.

The Summer Slide – When Managing Celiac, CSID, and Allergies Goes Awry

With resources running low in recent months, it’s been difficult to feed my family the ideal diet. Summertime makes it all that much harder with teens coming and going and making their own choices regarding what to eat and drink when they are not home.

One thing that has made it difficult to keep taboo foods out of the house is that my oldest son, Dawson, is scheduled for a small bowel biopsy next week, and has doctor’s orders to eat gluten every day in order to confirm his Celiac diagnosis.

On the other hand, Parker (my youngest son and the reason I started this blog in the first place) had repeated food allergy tests done at the start of summer and is no longer “allergic” to wheat, eggs, or milk. Of course at 12 years old, he took that as a green light to eat all the wheat and milk he wants. When his GI Dr. said he didn’t see a problem with it due to the fact Parker has gained 10 pounds in the last year, I didn’t have a lot of ground to stand on to insist on continuing his modified diet.

So, this summer I’ve allowed our family to consume many of the foods I’d normally avoid and never allow in my home.

For those that don’t live with food allergies or sensitivities, this may seem like a blessing. But when as a whole, I begin to see signs and symptoms that may indicate distress among myself and my kids, I know it’s due to the over-consumption of processed foods.

Parker’s eczema has returned and although I’d hoped he’d be rash free on his first day of 7th grade, we haven’t been able to rid him of a few patches. Now, granted, he’s been swimming a lot and spending time outside in public areas with tons of grass, trees, and dogs around (all of which he is still allergic to). But he’s also been eating a lot of refined carbohydrates and drinking beverages with high-fructose corn syrup.

I could avoid sharing these details with the world, but the struggle is real. It’s not easy sticking to the ideal diet of select carbohydrates, clean meats, and plenty of fresh vegetables. Especially when my older teenage boys both end up with their first jobs at fast-food restaurants!

Back-to-School Means Back to Healthy!

So what is a mom to do? First, getting my husband to support the transition back to a Paleo-based diet at home is crucial. Since he experienced feeling better on a gluten-free diet last winter, this shouldn’t be too hard.

Second, between my own gluten sensitivity and our oldest son most likely having Celiac, we really need to remove gluten from the house to avoid cross-contamination.

This only leaves our middle son a “victim” due to his ability to eat anything. Yet, I believe he will also feel better, have more control over his hyperactive personality and do better in school.

However, to avoid burn out on my part, this is going to be a transition. School starts tomorrow so my plan is for the month of September, to focus on breakfast and dinner at home and allow the two boys without Celiac to eat school lunches. As fall approaches, I will assess the results and go from there.

Time to dust off my Paleo cook books and make a meal plan for the week.

Questions for you …

How hard is it for you to stick with a strict diet for yourself or your child(children) with dietary restrictions?

Do you find the medical community in support of extreme diet adjustments or are they indifferent to anything not backed by extensive research?

If you have a larger family or teens, I’d love to know of the ways you’ve been successful in feeding your family and encouraging healthy choices when not at home.

Candex May Help with Sugar Digestion

Epiphany Regarding Increased Sugar Tolerance in My Daughter

First of all, I want to express my sincere sympathy for those families suffering as a result of the Sucraid shortage. Our family has a high enough sucrose tolerance that we are able to use enzyme supplements from various nutritional companies to offset any excess sugar consumption. Though we all experience mild to moderate symptoms when we eat foods containing added sucrose (mostly cane sugar as we avoid high fructose corn syrup when possible). I won’t pretend to relate to those who have ZERO TOLERANCE TO SUGARS, even in natural foods such as fruit or root vegetables.

However, I wanted to share a ray of hope! My oldest daughter, diagnosed with CSID at 14, has always had very low sugar tolerance. She is still able to have some starches and grains in moderation, so she can take in enough carb-based calories. One of her chronic symptoms associated with CSID is recurring yeast infections. Since this form of yeast (Candida albicans) thrives on starch and sugar, I believe finding a way to minimize the overgrowth of this yeast could help curb this issue.

She is currently 22 years old a pregnant and I was concerned that she wouldn’t be getting enough calories once typical cravings set in. For us, I’ve noticed a pattern that leads to craving food we shouldn’t eat the more we partake in sugary or starchy foods. It’s actually not just a theory — sugar is an addictive substance. Especially the processed, white form.

Candex Enzymes for Intestinal HealthAnyway, before I go off on an anti-sugar rant, my daughter is an adult and makes her own choices. But I recently learned of a supplement, containing mostly enzymes, that supports digestive health by targeting the specific types of cells that make up Candida albicans. As a bonus, this supplement also contains Amylase, Invertase, and Glucomylase.– the enzymes that break down different forms of sugar!

CANDEX is manufactured by Pure Essence Labs and sold through various online retailers including Energetic Nutrition (my former employer and currently still a freelance client – but I get no form of compensation for mentioning this product).

After checking with her doctor and getting approval to take while pregnant, my daughter started taking Candex about a month ago. In a totally unrelated conversation a little over a week ago, she asked me if I’d ever heard of someone with CSID who experienced a higher tolerance to sugar while pregnant.

I told her honestly, I hadn’t been in touch with many adults with CSID or discussed their diets in enough detail to know. Then it occurred to me that she had been taking Candex (be it not consistently and not even on an empty stomach as recommended by the manufacturer). This is totally theory based on one individual, but this supplement may actually be helping my daughter to have a higher tolerance to sucrose! She had also lost weight in her first trimester but has gained 6 pounds in the past month.

Now, I don’t condone or encourage regular consumption of sugary foods – especially when the food itself only offers empty calories and no nutritional value. But I would like to offer this as a possible help in assisting with sucrose digestion.

Can Candex HELP THOSE WITH CSID?

The only way to know the answer to this is for others to be willing to try it. If the manufacturer can claim it is safe for pregnant women and children (note this is not a medical claim as they are not citing a specific disease), there is theoretically little risk.

However, I can only say that Candex appears to be helping in my own family. But if – and this is a BIG IF – others were willing to try it after consulting their health care provider or dietitian, and then to share the result in a comment on this blog, then maybe the answer could help others.

Side Note on the Differences Between FDA-Approved Drugs and Nutritional Supplements

Nutritional supplements (such as Candex) are not approved by the FDA. One reason being the loopholes supplement companies would have to jump through (current Sucraid shortage point in case) to get approval. Another being that the natural ingredients that comprise supplements vary due to them being – well – natural  and not created in a lab. And a third reason is that the FDA only approves DRUGS used to treat disease or symptoms of disease. They don’t approve natural remedies that can help prevent imbalances that may lead to disease, or bring a body back into balance after experiencing illness or stress. FDA approval does NOT mean that the drug is safe or doesn’t have side-effects. It means that they have determined the benefits of a drug outweigh the risks or side-effects in taking it.

With that said, there are many nutritional supplement companies out there that have gone above and beyond in order to show consumers that they can manufacture products of high-quality and with safety standards. This means using pure ingredients, minimal fillers or additives, and testing for quality. But no matter how many trials or scientific studies may indicate a certain supplement may help with a specific health issue, they are not permitted to make a medical claim in describing their product.

This is a nutshell explanation and is actually very complicated. But I’ve spent the better part of the past year having to re-write product descriptions for Energetic Nutrition to comply with this standard of DSHEA (Dietary Supplement Health and Education Act). I have yet to finish revisions on this blog as a result, but I wanted to explain that any vague or non-specific descriptions are a result of this Act.

Your thoughts?

I’d love to hear your thoughts and questions about taking supplements for digestive health. Regardless of how well we curb our children’s or our own diets to compensate for CSID, taking something to help support healthy digestion, or assist our bodies in reducing symptoms associated with poor digestion, seems like a smart choice to me.

QOL Responds to Sucraid Shortage – Time Sensitive!

*Please note this is time sensitive information. Updates will be posted as they are available.

Sucraid Shortage and QOL Response Summary

SUCRAID® SHORTAGE UPDATE

Conference Call with QOL Medical CEO Derick Cooper on April 13, 2016 at 2 p.m. (EST)

For current information on Sucraid and QOL updates, visit the following websites:

The following are highlights and follow-up on Q&A from the Conference Call

The listed questions were provided to Mr. Cooper in advance. Some were answered in conjunction with others during the conference call so not every question is answered precisely, but is addressed at one point or another. I’ve noted a reference to the answer for another question when it applies.

(Note: I’ve done my best to present this information in an objective manner and to state the information provided by Mr. Cooper as accurately as possible for informational purposes only.)

  1. Could QOL Medical clarify the reason for the shortage? Is it related to a combination of factors or primarily one?
    Information known prior to the conference:
    a) Ingredient related: The FDA website statement mentions “shortage related to unavailable approved active pharmaceutical ingredient (API) from a supplier due to requirements related to complying with good manufacturing process.”
    b) New facility and production related: Letter by QOL Medical CEO March 2016 mentions the construction of an entire new facility and transfer of production to entirely new building.
    ANSWER: Mr. Cooper further explained the change in facilities was to transfer the production of the primary ingredient in Sucraid – sacrosidase – from a food-grade manufacturing facility to a pharmaceutical-grade facility per FDA request.
  2. Reason behind the decision to change production which resulted in the shortage: Sucraid has been produced for years and used by patients for 17+ years. If the formulation hasn’t changed at all, what happened now, to get us to where we are now?
    ANSWER: Sacrosidase originally made in a food-grade facility that no longer met pharmaceutical standards. QOL has rebuilt a new facility to meet all current standards. They are working on details for final approval to begin manufacturing with FDA. Although the production of the ingredient met FDA requirements prior to this change, QOL is now  “migrating manufacturing to meet modern standards”. Mr. Cooper mentioned that there are “items” to finalize with FDA within the week,  but did not mention what those details were.
    According to Mr. Cooper, the  requirements to manufacture pharmaceutical-grade products involve two steps: 1) Tests of ingredient itself after processing to ensure that the product still effective, and no contaminants were introduced  during the process. 2) Manufacturing process itself is very complicated. Mr. Cooper did his best to describe the general steps involved as an example to demonstrate the details and steps involved in the migration. They start with a lot of yeast, then extract the sacrosidase from the yeast and filter multiple times to ensure only sacrosidase is left in a pure form. The filter must be checked by outside vendor who has valid methods for checking filter. Each part of this process needs to be documented and submitted to the FDA. QOL has made valiant efforts to follow these procedures and paperwork requirements the entire time. FDA regulations are ever-changing and do not always apply to each specific product produced. These guidelines are subject to interpretation, and QOL has done their best to interpret the guidelines according to the specific process and manufacturing of sacrosidase (Sucraid). The FDA and QOL are working together to expedite the process as much as possible.
  3. What does QOL Medical see as the current status of the shortage? Can you expand on the below information?
    Information known prior to the conference:
    a) Letter by QOL Medical CEO March 2016 mentions “we have built this new facility, transferred the manufacturing process, begun production, and filed the necessary regulatory application with the FDA for approval. We have produced Sucraid® in the new facility and are awaiting final regulatory approvals for distribution.”
    b) Calls to Sucraid Assist / One Patient Services mentioned new facility has already produced Sucraid but that those lots have not been FDA approved.
    c) Accredo representative has stated the shortage prolongation is due to the FDA not approving an ingredient in Sucraid.
    To clarify, it was the production of the main ingredient, sacrosidase within a food-grade facility the FDA decided needed to take place in a pharmaceutical-grade facility which promoted the changes. QOL did not anticipate the building and transfer to new facilities taking so long, which is the assumed reason they did not manufacture enough Sucraid prior to the transfer to meet the demand. This is my interpretation of what seemed to be implied by Mr. Cooper.
  4. FDA states they are awaiting information from QOL in order to approve Sucraid lots. What are they waiting for? As of today, all paperwork has been turned in and inspection of facility is complete. There are a few minor details (not specified by Derek) that will be address tomorrow (April 14, 2016)  in a meeting between QOL and FDA for final resolution.
    ANSWER: At the time of the phone conference, FDA had completed a full inspection of the new facility and QOL had completed and submitted all required paperwork.
  5. Does QOL anticipate a foreseeable end date to shortage?
    ANSWER: Though this could not be answered precisely, Mr. Cooper said it could take up to 2-3 months before Sucraid is available again, but he was hopeful it would be sooner.
  6. Can QOL Medical provide an estimated timeline for a resolution of the shortage in terms of weeks, months or longer? Patients would like to know if they should plan to be without Sucraid for a short, medium or long period of time. They are cognizant any specific timeline is unlikely as it will invariably change.
    See ANSWER TO #5.
  7. How can the most vulnerable patients be prioritized to receive any available, or first available, Sucraid? For the families who have quit using Sucraid to make it more available to more at risk patients, how will it be communicated to us that there is enough to begin using it again?
    There are some units left they are saving for these patients according to dire need, however they will not use this supply if they are able to begin manufacturing a new batch soon.
  8. Does QOL have any data about other medications that experienced a similar facility approval related shortage situation? If so, what was the timeframe for those similar cases to be resolved? When it is released, it will be available within a week of FDA approval. NA
  9. Can QOL confirm that all Sucraid that has been currently released is only done with full FDA approval?
    Information known prior to the conference:
    a) That there are NO unapproved lots in circulation.
    b) That Sucraid lots requiring an informed consent listed additional possible risks but were still approved as safe to be released by the FDA.
    c) That current Sucraid is safe to use and that all possible risks have been fully disclosed in writing to patients. That neither QOL nor the FDA has hidden any important information from them.
    d) FDA stated this clearly in the teleconference, but the point seems to have still been confused by other external statements on the call and noise distraction.
    Details related to this question were not addressed specifically enough for me to confirm or deny the details.
  10. Even though it was FDA approved as safe to use with informed consent, What were the specific contaminants that were identified or posed as possible risks?
    ANSWER: I asked Mr. Cooper to clarify this once the call was opened to questions. If I understood him correctly, it was the “manufacturing of sacrosidase” that no longer met FDA requirements. There was NOT any contamination of the ingredient.

It’s possible the FDA was concerned the food-grade facility could lead to a risk which is why they prompted the move to new pharmaceutical grade facilities, but this inference was not made by Mr. Cooper himself.

ADDITIONAL DETAILS SHARED DURING THE CALL

To clarify the frustration of one parent on why they were not informed of the possible shortage in advance, Mr. Cooper explained that QOL doesn’t have the ability to directly contact patients due to HIPPA.

Possible Solutions to Communicating with Parents and Patients in the future  Not Explored during the call: Communicating in general with pharmacies, doctors, or insurance companies OR placing a notice in the packaging of Sucraid when this process started, letting patients know that a shortage was possible.

In answer to another caller’s question, Mr. Cooper clarified that this transfer to new facilities would not impact the cost of Sucraid or change any current programs designed to assist families in need.

Mr. Cooper ended the call by stating that QOL would love to hear stories about how Sucraid has made a difference. Again, they are doing all they can to expedite this approval process as soon as possible, and they are deeply sorry for the issues this shortage has caused to families.

Getting diagnosed with CSID as an adult or teen

As difficult as it is for parents to adjust to feeding their young child with a recent CSID diagnosis, suspecting or receiving a CSID diagnosis is even harder as a teen or adult. Babies and young children have the advantage of never knowing a life of consuming excess sugar or starch. If regulated and monitored, they will at least know how beneficial living without these foods can be. Even if they experiment as older teens or adults, they will quickly learn their tolerance levels and have their childhood lessons on proper food choices to fall back on

My miserable teen years

I often reflect back to my teen years and a point where I was so frustrated from getting an upset stomach or gas every time I ate, I wished I could just take a pill to satisfy my hunger. Eating has rarely been a pleasure for me. I used to blame it on stress alone, and I’m sure stress played a part, but if I had only known how to curb some of my common eating habits at a younger age – I wonder how different my life would look now.

You see, it wasn’t until after two of my children were diagnosed with CSID and I decided I would only eat what they could as I began experimenting with recipes, that I realized I, too, likely had CSID. But that was back in 2007 when I was a stay-at-home-mom and my time and financial resources were plenty.

Confirming what I already knew

Finally, a visit with the genetics department and a GI doctor back in 2014 confirmed my suspicions. However, there still wasn’t a pill out there that could help my cause! I had to make a daily choice – meal by meal – and avoid those foods I knew were harmful to me. I also learned that if I chose to continue consuming gluten or sugar (at that point I thought that moderation wouldn’t hurt me) – that it could lead to other problems. Eventually I realized my fibromyalgia symptoms were linked to gluten and sugar consumption as well. Beyond stomach upset, consuming taboo foods could also trigger a flare-up of chronic pain, severe PMS, or a migraine that lasted for days.

Bad habits die hard

But curbing poor eating habits and fighting the urge to consume what’s in front of me (especially when hunger demanded I eat something) is easier said than done. Despite knowing I am setting an example for my teenage and adult children (they are ages 12-22 as of the date of this post), I still give in on occasion – and always pay a price.

However, after experiencing a horrible migraine the day before heading off on a week-long writer’s conference at the end of March, my resolve strengthened. Enough is enough – I must learn to care for my own digestive health in hopes that my children will see me benefiting and make their own wise choices. (See PREPARING FOR THE 21-DAY SUGAR DETOX  to read more on my own commitment to change.)

A new reason to get well – I’m going to be a grandmother!

My oldest daughter is pregnant and constantly hungry  while she and her husband balance working 2 jobs each. Now that we are living close to each other, I desire to model proper eating habits regardless of the chaos of life. With a grandchild on the way, my motivation is stronger than ever. I want to be healthy and capable of spending as much time with him or her as possible!

 

Digestive Enzyme Deficiency Support

During the better part of the past year, I have had the privilege of working for an online retailer of various brands of high-quality supplements. Part of my job has been to write or rewrite their blog content and one of my first projects was to write a blog on digestive enzyme deficiency. My boss was eager for me to share my knowledge related to CSID with their general readership and we both learned a lot in the process.

I have posted the first part here with a link to read the entire article on the Energetic Nutrition blog.

Finding Support for Digestive Enzyme Deficiency

More than Occasional Tummy Troubles

A healthy, fully functioning digestive system provides essential detoxification, immune system support, and energy from the proper breakdown of food. It is a well-known fact that over 70% of our immune system is located in our digestive tract.

Many times symptoms of compromised digestion do not become apparent until disease or chronic illness are present.

If the digestive system is unable to function properly, various symptoms can surface from something as simple as occasional stomach ache, acid indigestion, or flatulence to more serious chronic conditions such as food allergies or digestive disease.

When digestive problems begin to interfere with everyday life, a quick, over-the-counter solution may be the first line of defense. However, these remedies often only cover up symptoms and do not address the root of digestive distress. For long-term results, adding digestive enzyme supplements can provide the body with added digestive support in addition to alleviating symptoms.

CONTINUE READING AT ENERGETIC NUTRITION/BLOG

2nd Edition of A Place to Start Without Sugar or Starch in Progress

2nd Edition of CSID Book as a Resource not a Cookbook

I also understand many of those who come across this site are looking for a resource that they can literally put their hands on. Those who had the opportunity to purchase my first edition while it was still in print appreciated the option to bring the book with them to doctor’s appointments or to the grocery store and to be able to mark pages and make their own notes.

Due to the constant changes and research regarding CSID (now called GSID in some circles), creating a 2nd Edition that meets the needs of a variety of tolerance levels is important to me. I will no longer be categorizing it as a “cookbook” but as a resource guide, where I share my journey in storytelling fashion and then offer resources at the end. Yes, it will include some basic recipes (or recipe concepts), food lists, and even menus – but all with the understanding that they are a starting point and should be adjusted according to individual needs, resources, and tolerance levels.

More CSID Posts to Come!

As I am still working on revising and reviewing all the current posts with this new blog format (I also transferred from Blogger to WordPress) – I have a goal of publishing at least 1 new post per week until the 2nd Edition is complete. I welcome your comments and questions as we create a community here of parents and others facing the challenges of managing CSID whether you have sufficient resources or not.

In addition, I want you to be able to find what you are looking for when you come here. If you had visited the old site and are unable to locate a specific page or post, please let me know. If you are a first-time visitor, try exploring the tabs at the top and their sub-categories to see if you can find answers there first.

In the meantime, hang in there and do the best you can one day at a time! If I’ve learned one thing in this CSID journey the past 10 years it is that the limitations actually point us toward consuming some of the healthiest foods on the planet. We are not deprived, but devoid of taking in an excess of those foods that science has proven are not really healthy for anyone.

Managing CSID when time and money are limited

Challenges of CSID during life changes

Over the past 18 months or so, our family has endured many challenges. Sticking with the ideal food and supplement choices has not only been hard, but impossible at times. I’ve had to allow compromises, only to see my children or myself suffer as a result. And as much as I want to be that “perfect” example for all those parents or adults out there struggling with a recent CSID or GSID diagnosis – I also want them to know there will always be challenges.

Yet, because of all the knowledge and experience I have gained from trial and error, and understanding from resources that focus on providing our bodies with digestive support – I am hopeful that in time we will get back on track.

I am also learning how different each CSID case is – along with how close relatives may experience various levels of carbohydrate intolerance, autoimmune diseases, or mild digestive upset. As of today, 4 of my 5 children as well as my husband recognize associated symptoms when they choose to partake in food containing sugar, starch, or dairy products. In June, my 17 year-old son, Dawson, received a Celiac Disease diagnosis after several unexplained events related to inflamed joints. (See Our CSID Story and scroll down to 1999 to read how we’ve had warning signs since he was young). I will write a separate post about the challenges and blessings that have resulted from this diagnosis. Ultimately, we are learning that our entire family should avoid sugar (processed, artificial, or corn syrup based), starch (from wheat and most grains), or dairy (except grass-fed organic on occasion) as much as possible.

And this is really the purpose behind my blog and my book A Place to Start Without Sugar or Starch. It’s about knowing we are not alone in this daily battle. It’s about understanding we will fail at times, but that it is possible to gain ground again and seek out the resources and answers that can provide a lifestyle of true health and wellness again

Here are my most recent tips to providing CSID-friendly meals while on the go and on a tight budget!

Tips for quick and easy CSID Meals

For some of these meals, a digestive enzyme may be required to help the individual process any naturally occurring sugars or starches. Choose one options per bullet point and modify them as needed.

Breakfast

  • Nitrate-free bacon with a semi-ripe banana, one slice of gluten-free toast (Schar brand is also egg free!)
  • Sweet potato (we use the light ones with white flesh) hash browns with chopped tomatoes and egg prepared as desired
  • Gluten-free, non-GMO cold cereal with unsweetened almond milk (digestive enzymes recommended)
  • Bob’s Red Mill Rice Farina (super excited to have recently discovered this as Cream of Wheat used to be our favorite years ago!) NOTE: This contains approximately 32 grams of starch per 1/4 cup, yet for unknown reasons everyone in our family seems to tolerate any food derived from brown rice very well.

Lunch/Snack

  • Raw almonds
  • KIND bars granola bars (gluten-free and non-GMO)
  • Unsweetened applesauce or semi-sweet fruit such as strawberries, raspberries, blueberries, grapes, or red pears.
  • Nitrate-free, gluten-free lunch meat sandwich on gluten-free bread (we use smashed avocado in place of mayo due to Parker’s egg white allergy)
  • Tuna salad (albacore, wild-caught tuna blended with avocado, olive oil, sea salt and a dash of white vinegar on a bed of romaine lettuce with black olives and grape tomatoes)
  • Non-GMO peanut or almond butter sandwich or cup with celery. We use Simply Fruit jam or honey.
  • Non-GMO chips (moderation recommended if they contain corn ingredients)
  • Fresh bite-sized, non-starchy veggies such as sugar snap peas, celery, cucumber

Dinner

  • Brown rice pasta with organic spaghetti sauce (if buying jarred sauce, check ingredients carefully), with ground turkey or grass-fed ground beef
  • Sweet potato skillet (1 pound ground turkey, beef, or leftover chicken plus 2-3 white sweet potatoes shredded or sliced and cooked until crispy, and a steamed vegetable such as green beans or broccoli). On occassion, we use brown rice in place of sweet potatoes.
  • Crockpot chicken with fresh rosemary, sea salt, and pepper. Add carrots, red potatoes, or non-GMO brown rice. Add sliced oranges or fresh cranberries if desired.
  • Most Thai or Asian meals are easy to duplicate at home and many Thai Kitchen products and recipes are suitable.
  • White bean turkey chili

 

This is what happens to your body if you drink warm honey-lemon water in the morning

Photos, Hodgepodge and Miscellany

This is what happens to your body if you drink warm honey-lemon water in the morning

Adding lemon to water not only quenches thirst better than any other beverage, but it also nourishes our body with vitamins, minerals and trace elements which we absolutely need. Lemon with water can be considered the best natural energy booster. When we wake up in the morning, our bodily tissues are dehydrated and are in need of water to push out toxins and rejuvenate the cells. In other words, this homemade “lemonade” helps eliminate internal toxins, regulating proper kidney and digestive tract functions by forcing them to work as smoothly as possible.

20 Unbelievable Reasons To Start Your Day With Water and Lemon

  1. Water with lemon provides the body with electrolytes which hydrate your body. As lemons contain good amount of electrolytes such as potassium, calcium and magnesium.
  2. Water with lemon is good for…

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